Giving voice and face to the illness experience

The other day I had the opportunity to have a conversation with the lovely Bonni Stachowiak for her podcast Teaching in Higher Ed. In the podcast, I talk about my experience with the intersectional identity of educational researcher, blogger, and breast cancer patient. You can download and listen to the podcast from this link: http://teachinginhighered.com/podcast/giving-voice-face-illness-experience/.

Oppression, doctors, and immigration inspections

As I mentioned in my previous post, I’m reading Freire’s Pedagogy of the Oppressed. So far, I’ve only managed the first chapter (as well as all the front matter). The first chapter has been a bit of a challenge – but I did find that after a while the ideas and concepts were repeating themselves, Read More …

Patient Health Literacies

In Arthur Frank’s (1995) seminal book The Wounded Storyteller, he cautions “On rare occasions when I have taught this book, students’ biggest initial difficulty is to stop reframing everything ill people say into a question of how some health-care worker might respond.” (Location 115) I often find myself falling into that trap. I find myself Read More …

Critical Digital Health Literacy

Digital Literacy – Read, Write, Participate (e.g. https://learning.mozilla.org/en-US/web-literacy) Digital Health Literacy – “the ability to seek, find, understand, and appraise health information from electronic sources and apply the knowledge gained to addressing or solving a health problem” (Norman & Skinner, 2008, para. 6). Critical Digital Health Literacy – the ability to seek, find, understand, and Read More …

Health (Illness) bloggers

In my literature review for my research I came across a great article (Keating & Rains, 2015) on the social support health (illness) bloggers receive. The article does a good job looking at social support of bloggers over a three year period. One of the things that came clear in the article is the use Read More …

Book launch: Agony and Absurdity: Adventures in Cancerland: An Anthology

Tomorrow (Wednesday) at about 7:30pm Pacific I’ll be reading my chapter, titled “Window Shopping” for the launch of the latest Bay Area Young Survivors (BAYS) anthology titled: Agony and Absurdity: Adventures in Cancerland: An Anthology. I hope to have my reading periscoped – and if we manage that I’ll put the link in here. If you Read More …

Why we keep blogging #IHSRC35

One of my biggest learnings of the phenomenology conference I attended this week (#IHSRC35) was some sense-making around interpretive research. My interpretation of all this was that one of the reasons we share our structured/analyzed/rigorous interpretations of phenomena is so that others can learn from our interpretations. Not learning in the sense of  a transmission of Read More …

Usage guidelines for researchers who use blogs

I’m thinking of calling out to the blogging community (more specifically to the cancer blogging community – but I’m sure this extends to other blogospheres), in trying to create some way to signify to researchers how the blogger wants their blog to be used in research. I’m thinking something similar to what creative-commons has done Read More …